Childbirth is an unforgettable experience for most mothers.
But Judy Robson doesn’t remember the birth of her first son at all.
She believes she has Kleine Levin Syndrome. Also known as Sleeping Beauty syndrome, this condition causes those affected to sleep for days or weeks on end.
Judy experiences these sleeping states frequently. She can get up, use the restroom, and eat, but she does so in a sleepwalking state.
After these sleeping episodes—her longest was 11 days—she has recovery periods that last several weeks. She feels as if she’s in a trance state, and doesn’t hear what people say or remember what happens during these periods.
She believes she was in one of these trance states when she gave natural birth to her son, Harley. After she gave birth, she fell immediately to sleep.
Two weeks later, when she woke, she had no memory of what happened.
“It upsets me because I don’t remember giving birth and it’s supposed to be a precious moment,” says Judy. “I think that’s the most upsetting episode I ever had. It gets me emotional because I missed it.”
And that’s not the only thing she’s missed.
“I’ve missed holidays and my sister’s 18th birthday because I was in an episode.”
The first time it happened, she was at a sleepover. She fell asleep, and didn’t wake up for eight days. Her parents took her home, but when she woke up she didn’t recognize her surroundings or anyone around her.
While she hasn’t been formally diagnosed, Professor Matthew Walker of the National Hospital for Neurology and Neurosurgery told the Daily Mail that Judy does have all the signs of Kleine-Levin Syndrome.
“What Ms. Robson describes would be completely in keeping with KLS,” said Professor Walker. “And I think it is an indication of how real this is.”
He says that people with this syndrome can sleep through almost anything—at the detriment to their lives.
Judy has slept through Christmas, and almost missed her wedding, waking up just days before.
Luckily, she has her husband to take care of the children when she’s in one of her episodes. Her mother helps out as well.
And while she’s been suffering from this for almost her whole life, doctors have yet to diagnose her. She’s been diagnosed incorrectly twice—with epilepsy and narcolepsy.
“I just want a diagnosis so I can get help,” says Judy.